Category Archives: Severe ME

FITNET trial criticised in Behavioural Sciences journal

/ by / 0 Comment
Severe ME patients publish paper questioning central findings of Dutch CBT/GET trial ...

Support Severe ME Day: Join the Silence Challenge

/ by / 0 Comment
August 8th is Severe ME Day. It is a day of awareness raising for those suffering severe Myalgic Encephalomyelitis as well as a day of remembrance. August 8th was the birthday of Sophia Mirza, a 32 year-old woman who died of ME. One way you can participate and raise awareness for ...

Voices from Sacramento: Janet Dafoe and Ashley Haugen

/ by / 6 Comments
Some of you may know Dr. Janet Dafoe and her daughter Ashley Haugen through their tireless advocacy work for ME.  Dr. Dafoe's son and Ashley's brother, Whitney Dafoe, has severe ME, and is the impetus behind their efforts to raise funding, raise awareness, and raise hell. These statements were read at the Sacramento California rally ...

Fluge, Mella, and Armstrong: more support for disordered metabolism in ME patients

/ by / 36 Comments
One of the frequent complaints of patients, researchers, and policymakers about ME research is that the findings are scattered, and the studies, small.  One group will discover X is elevated in 20 ME patients, only to find that when the test is done on another 13 patients two years down ...

SPEECHES FROM THE FRONT LINES OF #MILLIONSMISSING: TASHA & ZARA

/ by / 1 Comment
FROM THE FRONT LINES OF #MILLIONSMISSING ROUND 2: SPEECHES BY TASHA AND HER DAUGHTER ZARA (AT NYC PROTEST) ...

The UK ME/CFS biobank paves the way for bigger and better research

/ by / 7 Comments
On ME Awareness day this year, 12th May, the London School of Hygiene and Tropical Medicine (LSHTM) opened the UK ME/CFS Biobank for business, with blood samples available from 300 patients now, and there will soon be samples for over 200 controls. The ready availability of samples for large numbers ...

Take Action on Severe ME Day

/ by / 1 Comment
Today, August 8th, is Severe ME day.  Today is a day of remembrance, when we think of those whom we have lost to ME.  Severe ME Day is August 8th because that was Sophia Mirza's birthday.  Her death in 2003 was one of the first in which cause of death ...

Send Dr. Ron Davis a 75th birthday message!

/ by / 2 Comments
The Open Medicine Foundation (OMF) is inviting patients and supporters to send Dr. Ron Davis a message for his birthday and a donation to support his End ME/CFS Project. The OMF said that the messages would be compiled into a “massive card” that would be presented to him. Dr. Davis, of Stanford ...

Ron Davis: Preliminary data shows problems with energy metabolism

/ by / 30 Comments
Professor Ron Davis presented new findings from his Big Data study at Friday's Invest in ME 2016 conference. Davis’s preliminary data show serious problems with the biochemical processes needed to convert sugars and fats from food into energy the body can use. If these findings are replicated, this could prove ...

Davis at Invest in ME: New Severe Patients Data

/ by / 3 Comments
Invest in ME’s 2016 international research conference in London ended on Friday with a talk by Professor Ron Davis on his “Severely Ill, Big Data” project that was described by patients as “mind-blowing” and “really exciting”. His talk was the culmination of three days of research presentations by leading names in ...
Menu