Category Archives: Science

OMF Introduces #OMFScienceWednesday

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Learn about science that OMF is supporting. Follow OMF on Facebook and Twitter ...

The End ME/CFS Tour in Boston w/ Linda Tannenbaum

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Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Newton-Wellesley Hospital in Boston, MA, on Saturday, November 4, 2017 from 1:00 to 3:30 pm. The event is sponsored by the Massachusetts CFIDS/ME & FM Association. Open Medicine Foundation® (OMF) is the leading research organization working to end ME/CFS and ...

The End ME/CFS Tour in NYC w/ Linda Tannenbaum

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Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Mount Sinai West Hospital in New York City on Wednesday, November 1, 2017 from 6:30-8:00 pm. The event will be moderated by Terri L. Wilder, #MEAction New York Activist. Open Medicine Foundation® ...

FITNET trial criticised in Behavioural Sciences journal

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Severe ME patients publish paper questioning central findings of Dutch CBT/GET trial ...

Scientists gather for ME/CFS symposium this Saturday: Watch online!

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Influential scientific researchers in the ME/CFS community will come together this Saturday, Aug. 12 for a one-day community symposium focused on the molecular basis of ME/CFS at Stanford University Palo Alto, California. Register here to join the livestream and be part of the conversation. View the agenda here. (DVDs can also be ...
THE PACE TRIAL: THE MAKING OF A MEDICAL SCANDAL

THE PACE TRIAL: THE MAKING OF A MEDICAL SCANDAL

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Journal of Health Psychology Special Issue on The PACE Trial, Vol. 22,  No 9, Aug. 2017 Publication date: 31 July 2017 http://journals.sagepub.com/toc/hpqa/current   A Special Issue of the Journal of Health Psychology on the PACE Trial, is to be published and freely available online on Monday 31 July 2017. It marks a special contribution ...

#MEAction UK response to NICE 2017

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#MEAction UK response to NICE 2017 Background information UK clinical guidelines are written by a body called the National Institute for Health and Clinical Excellence (NICE). The current guidelines were last revised in 2007 and contain recommendations that people with ME consider unsuitable and potentially harmful. These guidelines also impact how ME ...
David Tuller: "I am committed to seeing this effort through to the end"

Tuller on PACE Investigation Plans: Not Beholden to Anyone

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#MEAction sat down with David Tuller recently for a wide-ranging discussion about the crowdfunding effort to help him continue his PACE investigations, the devastating stories he has heard from patients around the world, the poor media coverage of the PACE Trial flaws, and the ideal end result of all of the work ...

New York State Health Commissioner Sends Letter to Physicians about ME

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On Friday, May 26th, New York State (NYS) Health Commissioner Dr. Howard Zucker emailed a letter regarding Myalgic Encephalomyelitis (ME) to eighty-five thousand physicians in NYS. In the letter he describes the illness, encourages physicians to consider ME as part of a differential diagnosis when evaluating patients with symptoms, and ...

Julie Rehmeyer’s memoir is out. Purchase her book today!

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“I read an early version of Through the Shadowlands while I was driving around the country, tent in my rental car, terrified that something inexplicable was wrong with me, convinced that I was losing my mind. Julie Rehmeyer’s book showed me that I wasn’t ...
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