Category Archives: United Kingdom

These Dangerous ME/CFS Exercise And Symptom Denial Trials Must Come To An End

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The most morally generous description I can give to the majority of exercise and symptom-denial medical trials performed on ME/CFS patients is 'torture born from ignorance'. Even if you were to describe the evidence of harm as a result of the treatments explored by these trials as preliminary and often ...
Parliament EDM 271 Urges NICE to Update Guideline on ME

Parliament EDM 271 Urges NICE to Update Guideline on ME

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UPDATE On 20th September, NICE overturned the original proposal and announced it would review its guideline on ME. This is great news but means we need to double our efforts to make sure that the new guideline is robust enough to protect and help people with ME for generations to come ...
#MEACTION REJECTS SMILE TRIAL OF THE LIGHTNING PROCESS FOR CHRONIC FATIGUE SYNDROME

#MEACTION REJECTS SMILE TRIAL OF THE LIGHTNING PROCESS FOR CHRONIC FATIGUE SYNDROME

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FOR IMMEDIATE RELEASE: 21/09/17 CONTACT: press@meaction.net #MEAction Rejects the Findings of the SMILE Trial of The Lightning Process for Chronic Fatigue Syndrome Trial Uses Flawed Methodology That Can Lead To False Positives Following the release of the results of the SMILE trial, Ben HsuBorger of ME Action said: "The SMILE trial of the Lightning Process, a ...

Urge your MP to sign EDM 271!

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We need your help for parliament to recognise the strength of feeling about NICE guideline review ...

FITNET trial criticised in Behavioural Sciences journal

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Severe ME patients publish paper questioning central findings of Dutch CBT/GET trial ...
THE PACE TRIAL: THE MAKING OF A MEDICAL SCANDAL

THE PACE TRIAL: THE MAKING OF A MEDICAL SCANDAL

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Journal of Health Psychology Special Issue on The PACE Trial, Vol. 22,  No 9, Aug. 2017 Publication date: 31 July 2017 http://journals.sagepub.com/toc/hpqa/current   A Special Issue of the Journal of Health Psychology on the PACE Trial, is to be published and freely available online on Monday 31 July 2017. It marks a special contribution ...

#MEAction UK response to NICE 2017

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#MEAction UK response to NICE 2017 Background information UK clinical guidelines are written by a body called the National Institute for Health and Clinical Excellence (NICE). The current guidelines were last revised in 2007 and contain recommendations that people with ME consider unsuitable and potentially harmful. These guidelines also impact how ME ...

Troubled by NICE guidelines? Three easy ways you can help

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When you go to the doctor, you expect treatment to help, not harm you. But the NICE (NHS) guidelines for ME/CFS only recommend two main therapies for ME: Graded Exercise Therapy (GET - which asks you to gradually increase your exercise each week, ignoring any worsening symptoms) and Cognitive Behavioural Therapy ...

Write to Your MP in 5 Minutes about the ME/CFS NICE Guidelines

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  The NHS' NICE guidelines are badly out of date, and only offer two main treatments: Graded Exercise Therapy and Cognitive Behavioural Therapy. We've just heard that NICE, despite being due for a revision this year, are intending not to revise the guidelines after all. This is worrying for all patients ...
Action for M.E announces research

Action for M.E announces research

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UK charity Action for M.E has announced that they are funding two new research studies, totalling £42,000 ...
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