Category Archives: Actions

UNREST: Best Practices for Hosting a Community Screening

/ by / 3 Comments
This guide will provide you with ideas for hosting your own impactful screening of Unrest that will be well-attended, well-publicized and garner support from important institutions in your community for Myalgic Encephalomyelitis (ME).   Community screenings of Unrest have taken place all over the globe. While all successful events can look ...

Living w/ ME Support Group: November & December Schedule

/ by / 1 Comment
Our November and December schedule for the Living w/ ME Support Group has just been announced. Sunday, November 12: Avoiding Crashes Sunday, December 10: Surviving the Holidays For those who want to get involved in shaping the future of this support group be sure to join our upcoming planning session: Friday, ...

Stanford Med X Conference offers grant for patients & caregivers

/ by / 0 Comment
The Stanford Medicine X conference is offering a scholarship to attend the April 28-29, 2018 conference, and receive funding for airfare, hotel, and meals. The ePatient scholarship is open to both patients and caregivers who are engaged or empowered.  Applications are due Nov. 1 at 5 p.m. PT (8 p.m. ET). Apply now Ryan ...

How to Volunteer with #MEAction

/ by / 0 Comment
Want to become a part of the global team of #MEAction volunteers? Interested in getting more involved in general or using a particular skill or expertise? Want to better understand how you can use our digital platform and global network for greater ME activism and advocacy? Join us for a live ...

OMF TRIPLE TUESDAY: TRIPLE YOUR IMPACT FOR A CURE

/ by / 1 Comment
Open Medicine Foundation is excited to launch Triple Giving Tuesday OMF which will run from Tuesday, Oct. 17, through Tuesday, Nov. 28. Wonderful, caring, and compassionate OMF supporters, Jack and Dilla Cosgrove and family, have graciously pledged a $100,000 matching gift to encourage world-wide support of Triple Giving Tuesday OMF. Chris shares ...

The End ME/CFS Tour in Boston w/ Linda Tannenbaum

/ by / 2 Comments
Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Newton-Wellesley Hospital in Boston, MA, on Saturday, November 4, 2017 from 1:00 to 3:30 pm. The event is sponsored by the Massachusetts CFIDS/ME & FM Association. Open Medicine Foundation® (OMF) is the leading research organization working to end ME/CFS and ...

The End ME/CFS Tour in NYC w/ Linda Tannenbaum

/ by / 3 Comments
Open Medicine Foundation (OMF) president, Linda Tannenbaum, will give a special lecture on the state of ME/CFS research at Mount Sinai West Hospital in New York City on Wednesday, November 1, 2017 from 6:30-8:00 pm. The event will be moderated by Terri L. Wilder, #MEAction New York Activist. Open Medicine Foundation® ...

NEW! Living w/ ME Support Group

/ by / 6 Comments
Do you have ME and want to connect and share with others from around the world facing similar issues? Join us every other Sunday for a time of open sharing and discussion. Help us be a supportive and inclusive global community for each other. Our goal is to draws strength ...

#MEAction Launches First New York Organizing Meeting

/ by / 0 Comment
With the excitement and attention around the theatrical premiere of 'Unrest' in NYC this month now is the time to take ME advocacy and activism to a new level in New York. Over the past year there has been increasing progress at the state level. Last fall a #MillionsMissing protest was ...

Keep building momentum in Parliament for NICE review

/ by / 0 Comment
MP's are urging NICE to review Guideline on ME ...
Menu